Critical art and design projects about digital data

 

8530310771_f961b14b9e_m

For a while now, I have sought out the work of artists and designers who are working on interesting critical projects related to digital data, particularly personal data (as this is one of my main research interests). I have discussed some of this work in several of my publications, including my book on the sociology of the quantified self.

A recent tweet asking the Twitter ‘hive mind’ whose work they knew about generated many more additions (thank you to those who contributed).

Here’s a list that I have subsequently put together – I am sure it is by no means comprehensive, but at least it’s a start!

Autonomous Tech Fetish

Max Dovey

Dear Data

Lucy Kimbell

Thecla Schiphorst

Institute of Human Obsolescence

Tom O’Dea

Erica Scouti

Critical Interface Politics Research Group

Tega Brain

Pip Thornton

Data Materialities

Melanie Gilligan

Mitchell Whitelaw

David Benque

Zach Blas

James Bridle

Laurie Frick

Ted Hunt

Poetry in Data

Data Cuisine

The Center for Genomic Gastronomy

Grow Your Own: Life After Nature (exhibition)

panGenerator

Benjamin Grosser

Superflux

LingQL

Ellie Harrison

Heather Dewy-Hagborg

Julian Oliver

Gordan Savicic

Jennifer Lyn Morone

Brian House

Auger Loizeau

 

Photo credit: Fee Plumley: CC By 2.0 (found on Flickr)

Second edition of my book Fat out soon

I have revised and significantly expanded my book Fat (it is now double the length) for its second edition, due to be published mid-year. The book now includes much more material on new digital media and devices, and how they are used to contain, control and portray fat embodiment (often in very negative ways).

Here’s an excerpt from new material I have added to my chapter addressing the transgressive fat body, focusing on memes, GIFs and stock images.

My Google search for ‘fat memes’ found memes that not only stigmatize fat bodies, but are blatantly abusive and often cruel. Just some examples I came across include unflattering images of fat people with texts such as ‘I’m fat because obesity runs in my family. No-one runs in your family’, ‘I’m lazy because I’m fat and I’m fat because I’m lazy’ and ‘Sometimes when I’m sad I like to cut myself … another slice of cheesecake’. When I looked for ‘fat’ GIFs on the GIFY platform, here again were many negative portrayals of fat people, including cartoon characters like Homer Simpson as well as real people, again engaging in humiliating bodily performances. Many of these GIFs showed people jiggling their abdomens or dancing to demonstrate the magnitude of their flesh, belly flopping into swimming pools, eating greedily, smeared with food and so on. Here again, fat white men predominated as targets of ridicule.

Many companies now offer stock images for others to use to illustrate news articles, blog posts or reports. Searching for stock images online for ‘fat people eating’ returns a series of photographs and drawings that invariably depict the types of food consumed by fat people as archetypal high-calorie, fat-laden or fast food. Fat women, men and children are shown biting into or gazing at foods such as hamburgers, pizzas, French fries, fried chicken or cream cake, often with a look of greed on their faces and reclining on an over-stuffed armchair or sofa. Some of these people are scantily dressed or wearing clothes that reveal their large stomachs. One image even transposes a fat man with a hamburger, so that his body becomes the hamburger, topped with his head. Another depicts a hamburger as a hungry beast with a gaping maw consuming a man so that all that can be seen of his body is his legs. Some people are shown with links of sausages around their necks. The words used to describe these images are telling, as in these descriptions: ‘photo of a fat couch potato eating a huge hamburger and watching television’, ‘overweight woman greedily biting sweet cake’.

These types of images emphasize the enticements offered by foodstuff that are portrayed in popular and medical cultures as ‘unhealthy’ and ‘fattening’, pandering to greed and self-indulgence. These foods are depicted in some extreme cases as overwhelming human bodies, both in terms of expanding the size of bodies (and particularly of bellies) and in rendering humans helpless and devoured by their lust for these foods. It is as if these foods are controlling humans through the intensity of people’s desire to consume (and be consumed by) them.

Similar sentiments and images can be found in memes about food, regardless of whether the people represented in them are fat or not. These memes often display a high level of ambivalence about experiencing the desire for the ‘wrong’ foods, the pleasure of eating them and the guilt or self-hatred that may result from indulgence. Such food memes may depict large helpings of ‘junk’ foods with people viewing them with hungry expressions. Others dispense with any images of food itself, and simply show people looking eager or happy, and words such as ‘When people ask when I want to eat. Every day. All day. Anywhere. Anytime’, or ‘I’m on a seafood diet. I see food and eat it.’ Animals (especially cats) are used to stand in for people, as in the meme showing a cat desperately clawing its way through a venetian blind and the words, ‘Did somebody say food?’, and another featuring a close-up of a cat with its mouth stuffed with food, captioned ‘I regret nothing. Nothing.’ In these memes, whether or not food is shown, the dominant feelings that are expressed are the insatiable longing for food and the lack of control people have over their appetites, to the point that they are overwhelming.

New materialisms: key approaches

Over the past few years, I have been drawing more and more on new materialist theories, concepts and perspectives, particularly in thinking through how humans live with digital technologies (which is the focus of all my research at the moment). The approaches I am currently finding most useful come from a range of perspectives.

Recently, I sat down to map out and categorise the different approaches with which I have been working that use new materialist thinking. I made a big table, and used this to jot down these approaches, the main concepts and questions with which they engage, some key researchers in each approach, and the key theorists each draws on. The PDF of the whole table is available here (fourth revised version added 13 September 2018): Overview of new materialism approaches

I also made a word cloud to visually represent the key theorists identified in the table, and their relative importance in the literature (below). This is an easy way to quickly show which theorists tend to be drawn on the most in this literature.

materialisms word cloud

Below the table, I listed what I saw as common threads and key questions that emerged from the literature I had read when constructing the table. These are as follows:

COMMON THREADS: More-than-human worlds, human-nonhuman assemblage, vitality and vibrancy of things, ethico-onto-epistemology, relational ontology, sensory encounters, tensions between sameness and difference, how matter comes to matter, posthumanist performativity, identifying entanglements and shared agency, identifying exclusions, respectful engagements with disciplinary differences, the micropolitics of relations and affects, the generation and expression of agential capacities, encounters, forces (constraining and enabling) and intensities – how lines of flight might be generated – resistances, new possibilities for action or assemblages, thinking otherwise – intra-actions within assemblages between their various components- this includes power, which is transitory as it is enacted – interdependency between researcher and researched.

KEY QUESTIONS: How do objects under analysis establish conditions of action? How do humans incorporate and improvise with objects? What are the social lives of things? Which assemblages and networked power relations are they part of? How do the objects of study work and who does it work for? What imaginaries do they rely on and establish? Where are tensions/differences/novel formulations? Where are differences and exclusions? How do differences get made? What effects do differences have? What are the relations between things? How does matter come to matter? What theories can be brought to bear to make agential cuts of meaning? What are the affective intensities/forces and agential capacities generated by the assemblages under analysis? What do they do? After identifying the conditions of possibility (normalising agents), how to ‘think the unthinkable’/escape normalising discourses and habituated acts and open up new conditions of possibility? What are the ethics of more-than-human worlds and encounters? What lies beyond the ascendancy of the human – what is posthumous life? What can non-western onto-epistemologies offer?

 

 

 

My 2017 publications

Books

Lupton, D. (2017) Digital Health: Critical and Cross-Disciplinary Perspectives. London: Routledge.

Lupton, D., Mewburn, I. and Thomson, P. (eds) (2017) The Digital Academic: Critical Perspectives on Digital Technologies in Higher Education. London: Routledge.

Lupton, D. (editor) (2017) Self-Tracking, Health and Medicine: Sociological Perspectives. London: Routledge.

Special journal issues edited

‘Health, medicine and self-tracking’, Health Sociology Review (volume 26, issue 1), 2017 (also published as a book)

‘Digital media and body weight’, Fat Studies (volume 6, issue 2), 2017

‘The senses and digital health’, Digital Health (volume 3), 2017

Book chapters

Lupton, D. (2017) 3D printed self replicas: personal digital data made solid. In McGillivray, D, Carnicelli, S. and McPherson, G. (eds), Digital Leisure Cultures: Critical Perspectives. London: Routledge, pp. 26—38. (PDF Lupton 2017 3D self-replicas chapter).

Gard, M. and Lupton, D. (2017) Digital health goes to school: digitising children’s bodies in health and physical education. In Taylor, E. and Rooney, T. (eds), Surveillance Futures: Social and Ethical Implications of New Technologies for Children and Young People. London: Routledge, pp. 36—49. (PDF Gard Lupton 2017 digital health goes to school chapter)

Lupton, D. (2017) Digital bodies. In Silke, M., Andrews, D. and Thorpe, H. (eds), The Routledge Handbook of Physical Cultural Studies. London: Routledge, pp. 200—208. (PDF Lupton 2017 digital bodies chapter)

Lupton, D. (2017) Personal data practices in the age of lively data. In Daniels, J., Gregory, K. and McMillan Cottom, T. (eds), Digital Sociologies. London: Policy Press, 335—350. (PDF Lupton 2017 personal data practices in the age of lively data chapter)

Lupton, D., Mewburn, I. and Thomson, P. (2017) The digital academic: identities, contexts and politics. In Lupton, D., Mewburn, I. and Thomson, P. (eds), The Digital Academic: Critical Perspectives on Digital Technologies in Higher Education. London: Routledge, 1-19. (PDF Lupton Mewburn Thomson 2017 digital academic chapter)

Lupton, D. (2017) Cooking, eating, uploading: digital food cultures. In LeBesco, K. and Naccarato, P. (eds), The Handbook of Food and Popular Culture. London: Bloomsbury. (PDF Lupton 2017 cooking eating uploading chapter)

Journal articles

Lupton, D. and Williamson, B. (2017) The datafied child: the dataveillance of children and implications for their rights. New Media & Society, 19(5), 780—794.

Pink, S., Sumartojo, S., Lupton, D. and Heyes Labond, C. (2017) Mundane data: the routines, contingencies and accomplishments of digital living. Big Data & Society, 4(1), online, available at http://dx.doi.org/10.1177/2053951717700924

Thomas, G., Lupton, D. and Pedersen, S. (2017) ‘The appy for a happy pappy’: expectant fatherhood and pregnancy apps. Journal of Gender Studies, online ahead of print: doi:10.1080/09589236.2017.1301813

Lupton, D. (2017) How does digital health feel? Towards research on the affective atmospheres of digital health technologies. Digital Health, 3, online, available at http://journals.sagepub.com/eprint/ZCuMrRHMP3RsH9Z8f9v7/full

Lupton, D. and Michael, M. (2017) For me, the biggest benefit is being ahead of the game’: the use of social media in health work. Social Media + Society, 3(2), online, available at http://dx.doi.org/10.1177/2056305117702541

Lupton, D. (2017) Digital media and body weight, shape and size: an introduction and review. Fat Studies, 6(2), 119-134.

Lupton, D. and Michael, M. (2017) ‘Depends on who’s got the data’: public understandings of personal digital dataveillance. Surveillance and Society, 15(2), 254—268.

Lupton, D. (2017) ‘It just gives me a bit of peace of mind’: Australian women’s use of digital media for pregnancy and early motherhood. Societies, 7(3), online, available at http://www.mdpi.com/2075-4698/7/3/25/htm

Lupton, D. and Maslen, S. (2017) Telemedicine and the senses: a review. Sociology of Health & Illness, 39(8), 1557-1571.

Lupton, D. (2017) Feeling your data: touch and making sense of personal digital data. New Media & Society, 19(10), 1599-1614.

Lupton, D. (2017) ‘Download to delicious’: promissory themes and sociotechnical imaginaries in coverage of 3D printed food in online news sources. Futures, 93, 44-53.

Lupton, D. (2017) Towards design sociology. Sociology Compass, online ahead of print: doi:10.1111/soc4.12546

Lupton, D. (2017) Digital health now and in the future: findings from a participatory design stakeholder workshop. Digital Health, 3, online, available at http://journals.sagepub.com/doi/pdf/10.1177/2055207617740018

Pink, S., Sumartojo, S., Lupton, D. and Heyes Labond, C. (2017) Empathetic technologies: digital materiality and video ethnography. Visual Studies, 32(4), 371-381.

Editorials

Lupton, D. (2017) Towards sensory studies of digital health. Digital Health, 3, online, available at http://journals.sagepub.com/doi/abs/10.1177/2055207617740090

Lupton, D. (2017) Self-tracking, health and medicine. Health Sociology Review, 26(1), 1—5.

Design sociology review

HealthTech (42 of 60)

Earlier this year, I published four posts about design sociology. At the time, I was working on a review article on the topic for Sociology Compass. The article has now been published – see here. It’s behind a paywall, but I’m happy to send you a copy if you email me.

This is the abstract:

In this review essay, I introduce and map the field of what I call “design sociology”. I argue that design research methods have relevance to a wide range of sociological research interests, and particularly for applied research that seeks to understand people’s engagements with objects, systems and services, better engage publics and other stakeholders, work towards social change, and identify and intervene in futures. I discuss 3 main ways in which design sociology can be conducted: the sociology of design, sociology through design and sociology with design. I explain key terms in design and dominant approaches in social design research—participatory, critical, adversarial, speculative, and ludic design. Examples of how sociologists have already engaged with design research methods are outlined. The essay concludes with suggestions about what the future directions of design sociology might be.

Talks in Europe, November 2017

I am visiting Europe to give several talks in early November. Details are as follows:

Wednesday 1 November: Keynote presentation at the ‘Emotion and Affect in Dataified Worlds’ workshop, Helsinki, Finland.

Friday 3 November: Opening presentation with our Wellcome Trust grant research team at the ‘Researching Young People and Digital Health Technologies’ symposium we have organised, Manchester, UK (details here).

Monday 6 November:  Invited public lecture at the ‘Digital Health’ workshop, Malmo, Sweden.

Tuesday 7 November: Invited presentation at the ‘Challenges of Digital Health’ workshop, Orebro, Sweden.

Friday 10 November: Keynote at the ‘Monitoring the Self: Negotiating Technologies of Health, Identity and Governance’ conference, Helsinki, Finland (details here).

The senses and digital health

I have edited a special issue for the journal Digital Health on the theme of ‘The senses and digital health: sociocultural perspectives’.  Part of the editorial I have just finished for the special issue is excerpted below. The whole preprint of my editorial is here: Preprint of editorial for special issue on senses and digital health

(Edited to note that this editorial has now been published in the journal, and is available open access here.)

A few days before I began writing this editorial, I ran a discussion group with some people who were attending an outpatient cardiovascular rehabilitation program at a hospital in my home city, Canberra. The purpose of the discussion was to discover what sources of information and support people who had recently received hospital treatment for a serious heart condition were using and found valuable. As one of my major areas of research is the social and cultural dimensions of digital health (see, for example, my book Digital Health), I was particularly interested in the digital media and devices they may be using.

I began with general questions about what sources of information the participants had found useful in learning about their heart condition and rehabilitation following their diagnosis and surgery at this hospital. The group members told me that the hospital cardiac rehabilitation sessions were very important to them, not only as a way to learn about recovery and preventive actions they could take to improve their coronary health, but also as an opportunity to interact with other people who had gone through similar experiences. They explained that, together with the sessions they attended as part of this program, the print material (pamphlets and a book) about cardiac rehabilitation that had been given to them by the hospital had been the major contributors to learning about their disease and recovery. They commented that they had been able to discuss aspects of these materials during face-to-face encounters with healthcare staff if they needed to ask questions or receive clarification on any of the information within. Some people had also attended pre-admission group information sessions after their cardiac condition had been diagnosed, which their partner was also encouraged to attend. Others had had no opportunity for this kind of preparation, as they had experienced a sudden heart attack and found themselves in the emergency department receiving medical attention with little warning.

A dominant theme that emerged from the participants’ accounts was their desire to share insights from their experiences about the mysterious and unexpected nature of heart disease or heart failure. Several participants recounted their stories of how they had been diagnosed with heart disease or suffered a heart attack without realising that there was any problem with their hearts. For these people, the best way to share the insights they had gained from their own experiences was to tell their friends and family about it, as a form of warning. For some, friends or family members who had already experienced a heart condition were a source of information. They had listened to these other people recount their experiences and learnt about the symptoms and treatment.

When I moved onto the topic of digital technologies, it was clear that these were not important to most people in this rehabilitation program. Only about half of them even owned a smartphone. Several people said that they used at-home blood pressure and pulse rate monitoring devices as a way of tracking their heart health. They had purchased these from pharmacies, on their own initiative, rather than being encouraged to do so by their doctors. They printed out the data from a spreadsheet they maintained, or recorded their details with pen-and-paper, and showed this information to their doctors on follow-up appointments.

None of the participants used a digital device like a smartphone app or wearable device for monitoring their blood pressure. A small number did use these devices for tracking other body metrics, such physical activity levels. They were all in the younger age group (aged below 60). In terms of online sources of information, very few of the group had searched prior to their diagnosis for information related to any symptoms they may have experienced. About a third of the participants did go online after their diagnosis or surgery to seek information. However, none of the participants had ever used a patient support online forum or social media community for their health condition. When asked what they will do once they have finished the six weeks of the cardiac rehabilitation program, some mentioned that they would join one of their local gyms to continue their exercise routines. None was interested in joining an online patient support group at that point.

Reflecting on this focus group discussion as I write this editorial has highlighted some of the key issues I envisaged the issue as exploring. While my initial focus was digital health, these responses proved enlightening to me in their very de-emphasis and backgrounding of the digital. They provide a compelling counter to the techno-utopian visions that are often put forward by advocates of digital health technologies and the ideal of the ’digitally engaged patient’ that has become so dominant in the technological, medical and public health literature.

Profound affective and sensory aspects of living as a cardiac disease survivor were expressed in the participants’ accounts. For them, a key issue in how information about cardiovascular disease is communicated and shared was finding some way to let others know about the diverse symptoms that are not always recognised as signalling a heart problem. They reflected that they themselves in many cases hadn’t recognised the symptoms when they were living through the experience. The discussion group provided a forum for people to tell stories of hidden illness striking suddenly and catastrophically. They emphasised the uncertainty of not knowing what the physical sensations they were experiencing were, and whether they should be concerned and seek immediate medical attention.

Listening to their heart disease stories, and reading over them later as transcripts, I was reminded of Arthur Frank’s influential book The Wounded Storyteller, in which he discusses how people’s illness and physical suffering are expressed as narratives. Frank describes the wounded storyteller as ‘anyone who has suffered and lived to tell the tale … a guide and companion, a truth teller and trickster. She or he is a fragile human body and a witness to what endures’.

In the face of this uncertainty and experiencing life-threatening illness, major surgery, and then long recovery, the medical care and continuing support provided to the patients were vital to their sense of security and confidence in the integrity of their bodies. The participants’ positive feelings towards the rehabilitation program and what it offered them were obvious in their accounts. While the space and people were unfamiliar to me, I could perceive that the group members felt at ease coming to this space to which they were now habituated through their twice-weekly visits, and with staff who knew them and spoke to them kindly, and the other cardiac disease survivors in the group they had come to know. Compared with the strength of feeling about the face-to-face encounters they had in this program, the support and information offered by digital technologies were very much in the background. They were simply not important in these people’s everyday experiences of recovering from and managing their cardiac conditions.

These people’s experiences as they recounted them with filled with sensation and affect: the intense and sudden pain they experienced when having a heart attack, the surprise they felt at being diagnosed with a heart condition, the relief of having survived a serious medical problem and, in many cases, major surgery, and the comfort and reassurance of being supported during their rehabilitation by hospital staff and other group members. These were people whose everyday routines and assumptions about their bodies had been thrown into disarray. They wanted to be able to convey these sensory and affective experiences to me, and to others to warn them and instruct them on how to interpret their bodily signs and symptoms.

For this group, comprised of people who in many cases were not highly digitally literate or regular users of digital devices, digital technologies were on the margins of their care and support, or simply non-existent in their lifeworlds. It was the health professionals at the hospital, the other group members, the space provided for them to which they had become accustomed, and the print material given to them at the hospital that were the important and trusted elements in lifeworlds which they were moving and recovering their bodily integrity and confidence. The findings from the discussion group raise further questions about what further support should be offered to people once the six weeks of the rehabilitation program are over, and whether this should be mediated via digital technologies or provided in other ways.

New book out – Digital Health: Critical and Cross-Disciplinary Perspectives

9781138123458

My new book Digital Health: Critical and Cross-Disciplinary Perspectives has now been published with Routledge (link to the book is here). I have included excerpts from the book on this blog as I was writing it: see here, here,  here and here.

I did a Q&A session for Routledge, in which I explained some of the background to the book and give some advice for aspiring writers in my field. There is also a link to view the introductory chapter (see here).

 

New edited book now out – The Digital Academic

9781138202580

 

A book I co-edited with Inger Mewburn and Pat Thomson has now been published with Routledge, entitled The Digital Academic: Critical Perspectives on Digital Technologies in Higher Education. Here’s the link to the book on Amazon. We have wonderful contributions from researchers in Australia, the UK, Hong Kong, the USA and Canada.

This is the list of contents:

  1. The Digital Academic: Identities, Contexts and Politics: Deborah Lupton, Inger Mewburn and Pat Thomson
  2. Towards an Academic Self? Blogging During the Doctorate: Inger Mewburn and Pat Thomson
  3. Going from PhD to Platform: Charlotte Frost
  4. Academic Persona: The Construction of Online Reputation in the Modern Academy: David Marshall, Kim Barbour and Christopher Moore
  5. Academic Twitter and Academic Capital: Collapsing Orality and Literacy in Scholarly Publics: Bonnie Stewart
  6. Intersections Online: Academics Who Tweet: Narelle Lemon and Megan McPherson
  7. Sustaining Asian Australian Scholarly Activism Online: Tseen Khoo
  8. Digital Backgrounds, Active Foregrounds: Student and Teacher Experiences with ‘Flipping the Classroom’: Martin Forsey and Sara Page
  9. A Labour of Love: A Critical Examination of the ‘Labour Icebergs’ of Massive Open Online Courses: Katharina Freund, Stephanie Kizimchuk, Jonathon Zapasnik, Katherine Esteves, Inger Mewburn
  10. Digital Methods and Data Labs: The Redistribution of Educational Research to Education Data Science: Ben Williamson
  11. Interview – Sara Goldrick-Rab with Inger Mewburn
  12. Interview – Jessie Daniels with Inger Mewburn

 

Digital Health Stakeholder Workshop report now released

Smart Technology Living Lab

The Smart Technology Living Lab is pleased to release the report from our first stakeholder workshop, held in June at the University of Canberra. The workshop was focused on digital health, and participants engaged in co-design activities directed at mapping the landscape of current digital health and imagining the future of digital health.

The full report is available here: Report – Digital Health Stakeholder Workshop.

The workshop outcomes demonstrated the complex relations between individual consumers and healthcare providers, social groups, organisations and the digital health technologies that are currently used in Australia. The activities and ensuing discussions within the group generated the following key insights:

  • Digital health technologies offer valuable ways for health consumers, healthcare providers, community groups and health industries to create and share information about health, medicine and healthcare. These technologies can effectively provide information, support and social networks for health consumers and improve healthcare access and…

View original post 241 more words