Vitalities Lab Newsletter Number 5

VITALITIES LAB NEWSLETTER

Number 5, 11 September 2019

The Vitalities Lab is led by SHARP Professor Deborah Lupton, Centre for Social Research in Health and Social Policy Research Centre, UNSW Sydney. Team members are Dr Ashleigh Watson and Dr Clare Southerton. Further details here.

New publications

  • Maslen, S. and Lupton, D. (2019) ‘Keeping it real’: women’s enactments of lay health knowledges and expertise on Facebook. Sociology of Health & Illness, online first. doi: 10.1111/1467-9566.12982
  • Lupton, D. (2019) ‘The internet both reassures and terrifies’: exploring the more-than-human worlds of health information using the story completion method. Medical Humanities, online first. org/10.1136/medhum-2019-011700

Presentations/workshops

19 July: Ashleigh convened ‘Affect, Knowledge and Embodiment: A Critical Feminist Arts/Research Workshop’ at the Griffith Centre for Social and Cultural Research, Griffith University, Brisbane, with Dr Laura Rodriguez Castro (Griffith) and Sam Trayhurn (WSU).  Information about the workshop and copies of the zine can be found here.

AKE 1

14 August: Deborah gave an invited seminar presentation on her digital health research for the School of Public Health & Community Medicine, UNSW Sydney.

14 August: Deborah gave an invited lecture and a workshop, both on using social theory in a thesis, for the Arts & Social Sciences HDR student conference, UNSW Sydney.

19 August: Deborah gave an invited presentation to the UNSW Sydney Pioneers alumni association about her research on digital health.

FkNJBKKN

5 September: Clare gave a presentation on her chapter (co-authored with Miranda Bruce) about intimacies and the impersonal in ‘Black Mirror’, published in the edited volume Social Beings, Future Belongings (Routledge) at the book launch, ANU, Canberra. Her presentation and others at the launch can be viewed here.

 
9781138709782

9 September: Ashleigh ran a zine-making workshop at the Vitalities Lab on the theme of ‘algorithmic micropolitics’. A blog post about the workshop and the zine itself that was collaboratively made by participants can be found here.

10 September: Deborah gave an invited presentation at the ‘Bioethics Colloquium’, convened by UNSW and the South East Sydney Local Health District Clinical Ethics Service

Call for submissions: So Fi Zine

So Fi.jpgAshleigh has launched the call for submissions for So Fi Zine edition #6 – So Fi Zine is a sociological fiction zine for arts-based research, creative sociology, and art inspired by social science. The zine publishes short stories, poetry, photography, photo essays, cartoons, and other creative works. Edition #6 will be published in November 2019 and is inspired by Deborah Lupton’s digital, creative, more-than-human and future oriented research. Pieces are invited that creatively explore sociological futures: bodies, spaces, disciplines and things. Submission info and previous edition of the zine can be found here.

 

 

Media appearances

  • Deborah wrote an article for The Conversation on portrayals of heart disease in the popular media. She did follow-up interviews on ABC Sydney, Melbourne and Far South Coast radio
  • Deborah’s research on people’s use of digital health was quoted in an ABC Life online article about health apps

Re/imagining Personal Data Workshop: Call for participants

2199711056_ac91a4d27e_o

 

AoIR Preconference Workshop: Re/imagining Personal Data

  • Tuesday 1 October 2019, University of New South Wales, Sydney, Australia
  • 9.30 am-12.30 pm (followed by catered lunch)

Organisers: Deborah Lupton (UNSW Sydney), Larissa Hjorth (RMIT) and Annette Markham (Aarhus University)

Overview: This half-day workshop involves a selection of hands-on arts- and design-based activities to invite participants to re/imagine personal digital data. Participants will be able to experiment with innovative methods of eliciting creative and more-than-representational responses to personal data and generating speculative imaginaries about the futures of data. These methods can be used for teaching purposes or research projects.

We will be using these activities to explore and respond to these key questions:

  • What do personal data do?
  • How best can we use them?
  • What is our relationship with our personal data?
  • Which data do we want to keep and protect and which do we want to discard or forget?
  • What are our affective and sensory engagements with these data?
  • What are the futures of personal data?

Participants at all levels of research experience are invited to attend, including postgraduate students and people working outside the university sector.

Registration and lunch are free, but places are strictly limited.

Please contact Deborah Lupton, Faculty of Arts & Social Sciences, UNSW Sydney (d.lupton@unsw.edu.au ) as soon as possible with an email noting that you’d like to register to secure your place.

Please note that this workshop follows the Data Futures conference, 30 September 2019, also to be held at UNSW Sydney (details here), and precedes the Association of Internet Researchers Conference taking place in Brisbane (details here).

Photo credit: “I Love Data” She Wept. Bixtentro, Flickr. CC BY 2.0

Ideas for participatory arts/design activities with a digital health focus

I’m currently interested in innovative and creative ways of conducting research on people’s use of digital health technologies. (See my posts on design sociology here, here, here and here, and a report using these methods for a stakeholder workshop here.)

Here’s some ideas I’ve put together, some of which I have tried and others of which I plan to try soon.

Mapping the service ecology

What works?

  • Each participant writes on a card, answering the question …. Think about a time you used a digital device (smartphone, tablet, desktop, laptop, health monitoring device, wearable device etc) for health or fitness-related purposes? What was it? What did it do? What did you like/dislike/find useful/useless about it?

Then share their experience with the group.

Future digital health? ‘What if? scenario …’

  • Each participant writes on a card, answering the question …. Think about an object or service you would like to see designed that would help people prevent or manage illness and disease. It can be digital or not digital. It can be anything you can imagine – something that is purely science fiction, or something that perhaps could realistically be invented. What is it? What does it do? What does it look like? Who would use it? Who wouldn’t use it?
  • Write a brief scenario outlining an example of someone using this technology to promote their health.

Then share this idea with the group.

This will develop two catalogues of devices: what works, and future directions. This could involve presenting this information in a number of formats: sketches or cartoons, film scripts, personas, written scenarios etc.

Inspiration cards

These are a set of cards that can be used to inspire conversation and ideas in workshop.

E.g. I’ve created ‘Blood, Sweat, Tears … Digital’ cards for a digital health workshop. They can be found here: Blood, Sweat, Tears … Digital inspiration cards.

Collages

Give participants materials (pens, paper, glue, images) to make collages on a theme, expressing their thoughts and feelings. They can write words or draw images on the collage as well. They then present their collage to the group, explaining the choices they have made.

E.g. Make a collage showing how using digital technologies make you feel.

Story completion

Provide an opening to a story and ask the participants to complete it.

E.g.

“X decided they wanted to try an app to improve their health. They went to the Apple App Store and searched the health and fitness section …. [What happened next?]

“X decided to buy a fitness tracker to improve their health and physical fitness. They took it home and tried it on …. [What happened next?]

 Body mapping, more-than-human mapping, time-lines, sensory mapping (smell, sound, taste etc).

E.g. large sheets of paper with a blank outline of human figure in the centre. Participants asked to draw on the figure and around the figure, showing sensations, feelings, emotions concerning their health and fitness. Make links to other people, other living things (e.g. pets) and to non-living things (built environment, bikes, cars, digital technologies). Then explain their maps to other participants.

E.g. Draw a map of their life (or a typical person’s life) with a time-line showing how that person would use digital technologies/be tracked by digital technologies that can monitor/measure/reveal aspects of their bodies and health – how would this person access or use this information? How would other people access or use this information?

Memory elicitation

E.g. Think about the last time you went online to find information about a health or wellbeing topic. Write about what you looked for, what information you found, and how you acted (or disregarded) the information. Do you remember any emotions or physical sensations that were part of this experience?

Photo elicitation

E.g. ask people to use their smartphones to take photos of them using digital devices in the usual places. These can be added to timelines, maps etc. Or just record them talking about the photos and their practices.

Personas

The participants are asked to generate profiles about archetypal users of technologies. They give them names, describe their sociodemographic characteristics, sketch them and generate a short narrative describing their life, goals and behaviours related to the topic in question (e.g. use of a specific digital technology).

Make your own health app

Ask people to create an app store page for an app they have invented for health purposes. Ask them to give the app a name, write a promotional blurb for it (What will it do? What is so great and new about this app? Why should people download it onto theirphones?). Include some sketches of screenshots for the app, just like on the app stores.

Digital storytelling

Participants make short films using smartphones or other mini digital cameras to tell a narrative – could be autobiographical. Uses music and voice-overs as well as images, including art-work, photos or video footage. Stories can be created as a group exercise and shared with the group.

E.g. Participants make a film about their use of health apps or wearables and share with the group.