Symposium videos – The Social Impacts of Long COVID

‘The Social Impacts of Long COVID’ online symposium I convened was held on 5 March 2024. It featured presentations from Mexico, the USA, the UK, the Netherlands, Switzerland, Australia and New Zealand.

The videos of the 18 presentations in two sessions (nine presentations in Session 1, nine in Session 2) can be found on YouTube for viewing: Session 1 here and Session 2 here.

The list of presentations is below:

Session 1:

• Long COVID and the (mis)uses of restitution narrative: Mark D M Davis, Monash University, Melbourne, Australia
• The long haul: contested histories of Long COVID and ME/CFS in Australia: Kathy Anderson, University of Sydney, Australia
• Australian experiences of socially and politically mediated determinants of health equity following COVID-19 infection: Danielle Hitch, Sara Holton, Bec Downing, Krishna Vakil, Catherine Bennett, Deakin University, Melbourne, Australia
• Long COVID in The Conversation – the role of an academic journalism publication in media coverage: Lawrie Zion, Kate Stodart, La Trobe University, Melbourne, Australia
• Unveiling the socio-health effects of long COVID in adult population in Northwest Mexico: Marisol Grijalva-Castro, Juana María Meléndez Torres, Research Centre in Food & Development, Hermosillo Sonora, México
• The profound impact of long COVID on societal structures: governmental non-intervention and the role of social determinants of health: Pantéa Javidan, Stanford University, San Francisco, USA
• The economic burden of long COVID in the United States: evidence from the panel study of income dynamics: Matt Mazewski, Rutgers University, New Jersey, USA
• The debilitating discourses of long COVID: the public pedagogies of sporting bodies: Matt Ventresca, Georgia Institute of Technology/Australian National University, Canberra, Australia, Mary McDonald, Georgia Institute of Technology, Atlanta, USA
• We will not be silent: patients speak out about the role of epistemic injustice in erasing evidence of Long COVID in Australia: Pippa Yeoman, University of Sydney, and member of the Australia Long COVID Community, Robin Austin, member of the Australia Long COVID Community, Su Mon Kyaw-Myint, member of the Australia Long COVID Community, Kirsty Yeates, Australian National University, Canberra, member of the Australia Long COVID Community, Ruth Newport, administrator of the Australia Long COVID Community, Australia

Session 2:

• The Double-Bind: long COVID and the experience of cultural forgetting: Mary Zournazi, UNSW Sydney, Australia
• A qualitative account of psychological adaptation in long COVID: Joanne Wrench, Austin Health, University of Melbourne, Jacquie Eyres, Austin Health, University of Melbourne, Kerrie Clarke, Austin Health, University of Melbourne, Centre for Mental Health Learning, Victoria, Genevieve Rayner, Centre for Mental Health Learning, Victoria, Australia
• Validating long COVID with data: self-tracking experiences and practices: Sazana Jayadeva, University of Surrey, UK, Deborah Lupton, UNSW Sydney, Australia
• Living with the virus: an autoethnography of the traumatic experience of long COVID: Vivienne Matthies-Boon, Radboud University, the Netherlands
• Establishing a Long COVID Registry – early results and future research avenues: Paula Lorgelly, University of Auckland, Jenene Crossan, Experience & Long COVID Support Aotearoa, Andrew McCullough, University of Auckland, Aotearoa/New Zealand
• “This isn’t a life”: an analysis of HRQoL in a cohort of individuals with long COVID symptoms: Paula Lorgelly, University of Auckland, Jenene Crossan, Experience & Long COVID Support Aotearoa, Andrew McCullough, University of Auckland, Aotearoa/New Zealand
• Medical ambivalence and long COVID: the disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK: Damien Ridge, University of Westminster, London, UK, Alex Broom, University of Sydney, Australia, Nisreen A. Alwan, University of Southampton, University Hospital Southampton NHS Foundation Trust, UK, Carolyn A. Chew-Graham, Keele University, UK, Nina Smyth, University of Westminster, London, UK, Dipesh Gopal, Queen Mary University of London, UK, Tom Kingstone, Keele University, UK, Patrycia Gaszczyk, University College London, UK, Samina Begum, University of Westminster, London, UK
• Long COVID Times: An X (Twitter) informed rhythmanalysis of the complexity of pacing in chronic illness: Sam Martin, UCL/Oxford, Emma Uprichard, University of Warwick, UK
• Long COVID consultations between medical clinics and modern healing rituals: a case study in Switzerland: Marjolaine Viret, Francesco Panese, University of Lausanne, Switzerland