Re/imagining Personal Data Workshop: Call for participants

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AoIR Preconference Workshop: Re/imagining Personal Data

  • Tuesday 1 October 2019, University of New South Wales, Sydney, Australia
  • 9.30 am-12.30 pm (followed by catered lunch)

Organisers: Deborah Lupton (UNSW Sydney), Larissa Hjorth (RMIT) and Annette Markham (Aarhus University)

Overview: This half-day workshop involves a selection of hands-on arts- and design-based activities to invite participants to re/imagine personal digital data. Participants will be able to experiment with innovative methods of eliciting creative and more-than-representational responses to personal data and generating speculative imaginaries about the futures of data. These methods can be used for teaching purposes or research projects.

We will be using these activities to explore and respond to these key questions:

  • What do personal data do?
  • How best can we use them?
  • What is our relationship with our personal data?
  • Which data do we want to keep and protect and which do we want to discard or forget?
  • What are our affective and sensory engagements with these data?
  • What are the futures of personal data?

Participants at all levels of research experience are invited to attend, including postgraduate students and people working outside the university sector.

Registration and lunch are free, but places are strictly limited.

Please contact Deborah Lupton, Faculty of Arts & Social Sciences, UNSW Sydney (d.lupton@unsw.edu.au ) as soon as possible with an email noting that you’d like to register to secure your place.

Please note that this workshop follows the Data Futures conference, 30 September 2019, also to be held at UNSW Sydney (details here), and precedes the Association of Internet Researchers Conference taking place in Brisbane (details here).

Photo credit: “I Love Data” She Wept. Bixtentro, Flickr. CC BY 2.0

Vitalities Lab is go!

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It’s been a busy few weeks as I’ve moved to my new position as SHARP Professor in the Faculty of Arts & Social Sciences, University of New South Wales, Sydney. I am attached to both the Centre for Social Research in Health and the Social Policy Research Centre in the Faculty. But I’ve also established my own little research entity: the Vitalities Lab (click here for details).

I’ll be recruiting team members for the Lab very soon. I have a doctoral scholarship and postdoc positions to fill, and also have funds to support international visiting fellows.

The title of the Lab was chosen to encapsulate my hopes and plans for what we will do. ‘Vitalities’ points to engaging in lively social research methods, inspiring creativity, new directions, excitement and passion in research. It is also a nod to the new materialism theoretical perspectives with which the Lab will be engaging – particularly the vital materialism perspective espoused in the work of scholars such as Jane Bennett, Rosi Braidotti, Karen Barad and Donna Haraway. Vitalities further refers to the topics we’ll be exploring, which will be about human/nonhuman life itself: initially, people’s experiences with digital health technologies; living with data; and digital food cultures.

We will be running methods workshops, reading groups and other events.

Do get in contact if you’d like to learn more, make a visit to chat, start a postgraduate research degree with us, or otherwise collaborate in lively doings: d.lupton@unsw.edu.au

 

Image attribution: ‘Scattered light at Northern Spark’ by Tony Webster, Flickr, CC BY 2.0

My publications in 2018

Books

  • Lupton, D. (2018) Fat (revised 2nd edition). London: Routledge.

Book chapters

  • Lupton, D. (2018) Lively data, social fitness and biovalue: the intersections of health self-tracking and social media. In Burgess, J., Marwick, A. and Poell, T. (eds), The Sage Handbook of Social Media. London: Sage, pp. 562-578.
  • Lupton, D. (2018) Digital health and health care. In Scambler, G. (ed), Sociology as Applied to Health and Medicine, 2nd Houndmills: Palgrave, pp. 277-290.
  • Lupton, D. and Smith, GJD. (2018) ‘A much better person’: the agential capacities of self-tracking practices. In Ajana, B. (ed), Metric Culture: Ontologies of Self-Tracking Practices. London: Emerald Publishing, pp. 57-75.
  • Lupton, D. (2018) 3D printing technologies: a third wave perspective. In Michael Filimowicz, M. and Tzankova, V. (eds), New Directions in Third Wave HCI (Volume 1, Technologies). Springer: London, pp. 89-104.

Journal articles

Encyclopedia entry

Using graphic narratives for research translation and engagement

Today I attended a workshop to learn how to draw graphic narratives — in effect, comic strips. I was interested in learning this technique as research translation and engagement tool. I thought that it could be a fun way to visually represent findings from a research project. The method can also be used to plan research projects, as an alternative to tools such as mind-mapping or concept-mapping. The idea is that using a comic-strip format helps to simplify issues and present them in narrative formats.

We focused in the workshop on the best way to represent emotional states using simple drawing techniques. We started with drawing Donald Trump’s grumpy face using several different methods. Here’s the last Trump drawing I produced. We only had a minute to draw this one.

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Then we moved on to practising drawing different facial expressions to convey emotion. Here I am working hard on this task.

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We finished the workshop with a big task, which involved drawing a comic strip on a topic we had chosen. I decided to try and represent some research findings from a current project I have been analysing interview data from: on young people’s use of digital health. The project’s findings showed that young people constantly google health information and appreciate learning about the experiences of other young people, so that they feel less alone. YouTube is one source where they can find other young people talking about their health and illness experiences. But young people are also willing to seek medical advice if they feel this is needed. I tried to convey these key findings in my comic strip.

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Ideas for participatory arts/design activities with a digital health focus

I’m currently interested in innovative and creative ways of conducting research on people’s use of digital health technologies. (See my posts on design sociology here, here, here and here, and a report using these methods for a stakeholder workshop here.)

Here’s some ideas I’ve put together, some of which I have tried and others of which I plan to try soon.

Mapping the service ecology

What works?

  • Each participant writes on a card, answering the question …. Think about a time you used a digital device (smartphone, tablet, desktop, laptop, health monitoring device, wearable device etc) for health or fitness-related purposes? What was it? What did it do? What did you like/dislike/find useful/useless about it?

Then share their experience with the group.

Future digital health? ‘What if? scenario …’

  • Each participant writes on a card, answering the question …. Think about an object or service you would like to see designed that would help people prevent or manage illness and disease. It can be digital or not digital. It can be anything you can imagine – something that is purely science fiction, or something that perhaps could realistically be invented. What is it? What does it do? What does it look like? Who would use it? Who wouldn’t use it?
  • Write a brief scenario outlining an example of someone using this technology to promote their health.

Then share this idea with the group.

This will develop two catalogues of devices: what works, and future directions. This could involve presenting this information in a number of formats: sketches or cartoons, film scripts, personas, written scenarios etc.

Inspiration cards

These are a set of cards that can be used to inspire conversation and ideas in workshop.

E.g. I’ve created ‘Blood, Sweat, Tears … Digital’ cards for a digital health workshop. They can be found here: Blood, Sweat, Tears … Digital inspiration cards.

Collages

Give participants materials (pens, paper, glue, images) to make collages on a theme, expressing their thoughts and feelings. They can write words or draw images on the collage as well. They then present their collage to the group, explaining the choices they have made.

E.g. Make a collage showing how using digital technologies make you feel.

Story completion

Provide an opening to a story and ask the participants to complete it.

E.g.

“X decided they wanted to try an app to improve their health. They went to the Apple App Store and searched the health and fitness section …. [What happened next?]

“X decided to buy a fitness tracker to improve their health and physical fitness. They took it home and tried it on …. [What happened next?]

 Body mapping, more-than-human mapping, time-lines, sensory mapping (smell, sound, taste etc).

E.g. large sheets of paper with a blank outline of human figure in the centre. Participants asked to draw on the figure and around the figure, showing sensations, feelings, emotions concerning their health and fitness. Make links to other people, other living things (e.g. pets) and to non-living things (built environment, bikes, cars, digital technologies). Then explain their maps to other participants.

E.g. Draw a map of their life (or a typical person’s life) with a time-line showing how that person would use digital technologies/be tracked by digital technologies that can monitor/measure/reveal aspects of their bodies and health – how would this person access or use this information? How would other people access or use this information?

Memory elicitation

E.g. Think about the last time you went online to find information about a health or wellbeing topic. Write about what you looked for, what information you found, and how you acted (or disregarded) the information. Do you remember any emotions or physical sensations that were part of this experience?

Photo elicitation

E.g. ask people to use their smartphones to take photos of them using digital devices in the usual places. These can be added to timelines, maps etc. Or just record them talking about the photos and their practices.

Personas

The participants are asked to generate profiles about archetypal users of technologies. They give them names, describe their sociodemographic characteristics, sketch them and generate a short narrative describing their life, goals and behaviours related to the topic in question (e.g. use of a specific digital technology).

Make your own health app

Ask people to create an app store page for an app they have invented for health purposes. Ask them to give the app a name, write a promotional blurb for it (What will it do? What is so great and new about this app? Why should people download it onto theirphones?). Include some sketches of screenshots for the app, just like on the app stores.

Digital storytelling

Participants make short films using smartphones or other mini digital cameras to tell a narrative – could be autobiographical. Uses music and voice-overs as well as images, including art-work, photos or video footage. Stories can be created as a group exercise and shared with the group.

E.g. Participants make a film about their use of health apps or wearables and share with the group.

Critical art and design projects about digital data

 

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For a while now, I have sought out the work of artists and designers who are working on interesting critical projects related to digital data, particularly personal data (as this is one of my main research interests). I have discussed some of this work in several of my publications, including my book on the sociology of the quantified self.

A recent tweet asking the Twitter ‘hive mind’ whose work they knew about generated many more additions (thank you to those who contributed).

Here’s a list that I have subsequently put together – I am sure it is by no means comprehensive, but at least it’s a start!

Autonomous Tech Fetish

Max Dovey

Dear Data

Lucy Kimbell

Thecla Schiphorst

Institute of Human Obsolescence

Tom O’Dea

Erica Scouti

Critical Interface Politics Research Group

Tega Brain

Pip Thornton

Data Materialities

Melanie Gilligan

Mitchell Whitelaw

David Benque

Zach Blas

James Bridle

Laurie Frick

Ted Hunt

Poetry in Data

Data Cuisine

The Center for Genomic Gastronomy

Grow Your Own: Life After Nature (exhibition)

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Benjamin Grosser

Superflux

LingQL

Ellie Harrison

Heather Dewy-Hagborg

Julian Oliver

Gordan Savicic

Jennifer Lyn Morone

Brian House

Auger Loizeau

 

Photo credit: Fee Plumley: CC By 2.0 (found on Flickr)

New materialisms: key approaches

Over the past few years, I have been drawing more and more on new materialist theories, concepts and perspectives, particularly in thinking through how humans live with digital technologies (which is the focus of all my research at the moment). The approaches I am currently finding most useful come from a range of perspectives.

Recently, I sat down to map out and categorise the different approaches with which I have been working that use new materialist thinking. I made a big table, and used this to jot down these approaches, the main concepts and questions with which they engage, some key researchers in each approach, and the key theorists each draws on. The PDF of the whole table is available here (fourth revised version added 13 September 2018): Overview of new materialism approaches

I also made a word cloud to visually represent the key theorists identified in the table, and their relative importance in the literature (below). This is an easy way to quickly show which theorists tend to be drawn on the most in this literature.

materialisms word cloud

Below the table, I listed what I saw as common threads and key questions that emerged from the literature I had read when constructing the table. These are as follows:

COMMON THREADS: More-than-human worlds, human-nonhuman assemblage, vitality and vibrancy of things, ethico-onto-epistemology, relational ontology, sensory encounters, tensions between sameness and difference, how matter comes to matter, posthumanist performativity, identifying entanglements and shared agency, identifying exclusions, respectful engagements with disciplinary differences, the micropolitics of relations and affects, the generation and expression of agential capacities, encounters, forces (constraining and enabling) and intensities – how lines of flight might be generated – resistances, new possibilities for action or assemblages, thinking otherwise – intra-actions within assemblages between their various components- this includes power, which is transitory as it is enacted – interdependency between researcher and researched.

KEY QUESTIONS: How do objects under analysis establish conditions of action? How do humans incorporate and improvise with objects? What are the social lives of things? Which assemblages and networked power relations are they part of? How do the objects of study work and who does it work for? What imaginaries do they rely on and establish? Where are tensions/differences/novel formulations? Where are differences and exclusions? How do differences get made? What effects do differences have? What are the relations between things? How does matter come to matter? What theories can be brought to bear to make agential cuts of meaning? What are the affective intensities/forces and agential capacities generated by the assemblages under analysis? What do they do? After identifying the conditions of possibility (normalising agents), how to ‘think the unthinkable’/escape normalising discourses and habituated acts and open up new conditions of possibility? What are the ethics of more-than-human worlds and encounters? What lies beyond the ascendancy of the human – what is posthumous life? What can non-western onto-epistemologies offer?

 

 

 

My 2017 publications

Books

Lupton, D. (2017) Digital Health: Critical and Cross-Disciplinary Perspectives. London: Routledge.

Lupton, D., Mewburn, I. and Thomson, P. (eds) (2017) The Digital Academic: Critical Perspectives on Digital Technologies in Higher Education. London: Routledge.

Lupton, D. (editor) (2017) Self-Tracking, Health and Medicine: Sociological Perspectives. London: Routledge.

Special journal issues edited

‘Health, medicine and self-tracking’, Health Sociology Review (volume 26, issue 1), 2017 (also published as a book)

‘Digital media and body weight’, Fat Studies (volume 6, issue 2), 2017

‘The senses and digital health’, Digital Health (volume 3), 2017

Book chapters

Lupton, D. (2017) 3D printed self replicas: personal digital data made solid. In McGillivray, D, Carnicelli, S. and McPherson, G. (eds), Digital Leisure Cultures: Critical Perspectives. London: Routledge, pp. 26—38. (PDF Lupton 2017 3D self-replicas chapter).

Gard, M. and Lupton, D. (2017) Digital health goes to school: digitising children’s bodies in health and physical education. In Taylor, E. and Rooney, T. (eds), Surveillance Futures: Social and Ethical Implications of New Technologies for Children and Young People. London: Routledge, pp. 36—49. (PDF Gard Lupton 2017 digital health goes to school chapter)

Lupton, D. (2017) Digital bodies. In Silke, M., Andrews, D. and Thorpe, H. (eds), The Routledge Handbook of Physical Cultural Studies. London: Routledge, pp. 200—208. (PDF Lupton 2017 digital bodies chapter)

Lupton, D. (2017) Personal data practices in the age of lively data. In Daniels, J., Gregory, K. and McMillan Cottom, T. (eds), Digital Sociologies. London: Policy Press, 335—350. (PDF Lupton 2017 personal data practices in the age of lively data chapter)

Lupton, D., Mewburn, I. and Thomson, P. (2017) The digital academic: identities, contexts and politics. In Lupton, D., Mewburn, I. and Thomson, P. (eds), The Digital Academic: Critical Perspectives on Digital Technologies in Higher Education. London: Routledge, 1-19. (PDF Lupton Mewburn Thomson 2017 digital academic chapter)

Lupton, D. (2017) Cooking, eating, uploading: digital food cultures. In LeBesco, K. and Naccarato, P. (eds), The Handbook of Food and Popular Culture. London: Bloomsbury. (PDF Lupton 2017 cooking eating uploading chapter)

Journal articles

Lupton, D. and Williamson, B. (2017) The datafied child: the dataveillance of children and implications for their rights. New Media & Society, 19(5), 780—794.

Pink, S., Sumartojo, S., Lupton, D. and Heyes Labond, C. (2017) Mundane data: the routines, contingencies and accomplishments of digital living. Big Data & Society, 4(1), online, available at http://dx.doi.org/10.1177/2053951717700924

Thomas, G., Lupton, D. and Pedersen, S. (2017) ‘The appy for a happy pappy’: expectant fatherhood and pregnancy apps. Journal of Gender Studies, online ahead of print: doi:10.1080/09589236.2017.1301813

Lupton, D. (2017) How does digital health feel? Towards research on the affective atmospheres of digital health technologies. Digital Health, 3, online, available at http://journals.sagepub.com/eprint/ZCuMrRHMP3RsH9Z8f9v7/full

Lupton, D. and Michael, M. (2017) For me, the biggest benefit is being ahead of the game’: the use of social media in health work. Social Media + Society, 3(2), online, available at http://dx.doi.org/10.1177/2056305117702541

Lupton, D. (2017) Digital media and body weight, shape and size: an introduction and review. Fat Studies, 6(2), 119-134.

Lupton, D. and Michael, M. (2017) ‘Depends on who’s got the data’: public understandings of personal digital dataveillance. Surveillance and Society, 15(2), 254—268.

Lupton, D. (2017) ‘It just gives me a bit of peace of mind’: Australian women’s use of digital media for pregnancy and early motherhood. Societies, 7(3), online, available at http://www.mdpi.com/2075-4698/7/3/25/htm

Lupton, D. and Maslen, S. (2017) Telemedicine and the senses: a review. Sociology of Health & Illness, 39(8), 1557-1571.

Lupton, D. (2017) Feeling your data: touch and making sense of personal digital data. New Media & Society, 19(10), 1599-1614.

Lupton, D. (2017) ‘Download to delicious’: promissory themes and sociotechnical imaginaries in coverage of 3D printed food in online news sources. Futures, 93, 44-53.

Lupton, D. (2017) Towards design sociology. Sociology Compass, online ahead of print: doi:10.1111/soc4.12546

Lupton, D. (2017) Digital health now and in the future: findings from a participatory design stakeholder workshop. Digital Health, 3, online, available at http://journals.sagepub.com/doi/pdf/10.1177/2055207617740018

Pink, S., Sumartojo, S., Lupton, D. and Heyes Labond, C. (2017) Empathetic technologies: digital materiality and video ethnography. Visual Studies, 32(4), 371-381.

Editorials

Lupton, D. (2017) Towards sensory studies of digital health. Digital Health, 3, online, available at http://journals.sagepub.com/doi/abs/10.1177/2055207617740090

Lupton, D. (2017) Self-tracking, health and medicine. Health Sociology Review, 26(1), 1—5.

Design sociology review

HealthTech (42 of 60)

Earlier this year, I published four posts about design sociology. At the time, I was working on a review article on the topic for Sociology Compass. The article has now been published – see here. It’s behind a paywall, but I’m happy to send you a copy if you email me.

This is the abstract:

In this review essay, I introduce and map the field of what I call “design sociology”. I argue that design research methods have relevance to a wide range of sociological research interests, and particularly for applied research that seeks to understand people’s engagements with objects, systems and services, better engage publics and other stakeholders, work towards social change, and identify and intervene in futures. I discuss 3 main ways in which design sociology can be conducted: the sociology of design, sociology through design and sociology with design. I explain key terms in design and dominant approaches in social design research—participatory, critical, adversarial, speculative, and ludic design. Examples of how sociologists have already engaged with design research methods are outlined. The essay concludes with suggestions about what the future directions of design sociology might be.