My two submissions to the Australian government COVID-19 Response Inquiry

I have just made two submissions to the Australian government ‘COVID-19 Response Inquiry’.

The first submission summarises relevant findings from my four-year ‘Australians’ Experiences of COVID-19′ project. The submission can be downloaded below.

The second submission, written with Dr Kerryn Drysale, provides relevant findings from our project ‘Diverse Experiences and Understandings of Immunity in the Pandemic Age’. It can be downloaded below.

The social impacts of long COVID online symposium

5 March 2024

Convened by Professor Deborah Lupton, Vitalities Lab, Centre for Social Research in Health and Social Policy Research Centre, UNSW Sydney

This online symposium examines the social impacts of long COVID across a range of geographical locations and socioeconomic contexts.

Abstracts for possible presentations are invited from researchers on the following topics or any others related to the social impacts of long COVID:

  • How living with long COVID affects people’s identities, social and family relationships, life opportunities and inclusion in society
  • The economic impacts of long COVID
  • How long COVID is affecting workplaces and educational settings
  • How people with lived experience of long COVID are supporting and learning from each other
  • Long COVID activism
  • Media portrayals of long COVID
  • Arts-based and other creative responses to the experience of long COVID

To submit an abstract for consideration, please email Deborah Lupton (d.lupton@unsw.edu.au) with a description of your proposed presentation (around 200 words in length) as well as a presentation title and the name/s and affilation/s of the presenters. Deadline for abstracts: 12 midnight in your time zone, 1 February 2024.

Once I see what time zones accepted presenters are in, I will try to structure the time of the event so that it fits presenters’ (and my) time zone as well as I can.

New report out – Australians’ Experiences of COVID-19 Stage 4 Survey Findings, 2023

I have just published the findings of Stage 4 of my ‘Australians’ Experiences of COVID-19′ project. The summary and key findings from this survey are provided below. The entire 25-page report is available for download here.

Summary

The national online survey findings reported in this report are from the most recent stage of the ‘Australians’ Experiences of COVID-19’ project. Conducted in mid-September 2023, this representative survey investigates 1,000 Australians’ experiences of COVID-19 and preventive practices such as vaccination and face mask wearing, their perceptions of COVID-19 risk, who they think are the most trusted sources of COVID-19 information and their views on the federal and their state/territory governments’ current management of the pandemic. The survey results show that the pandemic continues to badly affect Australians in terms of accumulated infections and prevalence of long COVID. Yet respondents were equivocal about the extent to which COVID-19 is a continuing risk to Australians. For the most part they were not strongly supportive of continued preventive actions against infection such as face mask wearing and vaccination. They did not hold high trust in any COVID-19 information source, including medical experts and scientists. Respondents were divided about how well their governments were managing the pandemic.

Key findings

  • More than two-thirds of respondents (68%) reported having had at least one COVID-19 infection to their knowledge. One third (32%) reported one infection. A further 22% reported two infections, with a total of 13% experiencing three or more. Younger people reported more infections than older people, as did those in the middle household income category.
  • Of those who reported COVID-19 infections, 40% had experienced long COVID. More younger people experienced long COVID symptoms, while far fewer people on the lowest household income level reported long COVID.
  • The respondents reported a high take-up of the first three COVID-19 vaccines. The vast majority (93%) responded they had been vaccinated, with 21% having had two doses and 36% reporting three doses. However, after three doses, the proportion drops considerably.
  • Responses were mixed concerning plans for future COVID-19 vaccination. A total of 36% said they were planning to get another vaccine in 12 months, a similar proportion (37%) said no, and 27% were unsure. Those in the oldest age group were more likely to say that they were planning to get a further COVID-19 vaccination, as were people living in a capital city or regional city.
  • Face mask wearing as a personal practice was low. Only 9% of respondents said that they always wore a face mask to protect themselves against COVID-19 when inside public places. A further 26% said that they sometimes used a mask in these settings. This is a combined total of just over one-third of respondents (35%) who were still masking at least sometimes. Younger respondents were more likely to wear face masks than those in the older groups, as were those in the middle income category.
  • Support for face mask mandates for healthcare workers while at work was higher, with 58% in at least partial support. Here again, younger people and those in the middle income category were more supportive of mandating face masks for healthcare workers.
  • Doctors were considered the most trustworthy sources of COVID-19 information (60%), followed by experts in the field (53%), Australian government health agencies (52%), global health agencies (49%), scientists (45%), community health organisations (35%), Australian government leaders (31%) and other healthcare providers (28%). News reports (17%), friends and family (13%), social media (7%) and religious institutions (3%) were considered the least trustworthy. Older people were more likely to trust doctors and Australian government health agencies. The youngest group was the least trusting of scientists and experts in the field. Those in towns were less trusting of Australian government leaders, global health agencies and experts. Those in the lowest income category trusted news sources more than those in the other categories. A greater percentage of respondents in the two higher income categories said they trusted global health agencies.
  • A slight majority (59%) thought that COVID-19 was still posing a risk to Australians: 17% said definitely, while a further 42% saw COVID-19 as somewhat of a risk. This left 28% who did not view COVID-19 as much of a continuing risk, and 13% who thought it not a risk at all. The oldest age group saw COVID-19 as more of a continuing risk to Australians than did the younger groups, as did respondents located in regional cities and towns and those in the middle income category.
  • Respondents were mixed in their assessments of how well their federal and state/territory governments were currently managing COVID-19. They were evenly divided between positive assessments (36% for both federal and state/territory governments) and more equivocal assessments: 34% (federal) and 32% (state/territory). The youngest and oldest age groups were least positive about their governments’ management of COVID-19. People in towns were less positive than those in capital cities or regional cities. People with the middle levels of household income were more positive than those in other income categories.

Arguing on Facebook about COVID: a case study of key beliefs, rationales and strategies

Throughout the COVID-19 crisis, social media platforms have become well-known for both disseminating misinformation and conspiracy theories as well as acting as valuable information sources concerning the novel coronavirus and governments’ efforts to manage and contain COVID. Facebook in particular – the world’s most popular social media site – has been singled out as a key platform for naysayers such as anti-vaccination exponents and ‘sovereign citizens’ to express their resentment at containment measures such as lockdowns, quarantine and self-isolation regulations, vaccination mandates and face-covering rules.

What rationales and beliefs underpin these arguments? How and to what extent are they contested or debated on Facebook? What rhetorical strategies are employed by commentators to attempt to persuade others that their views/facts are correct?

To explore these questions, I chose a case study of a short video (2 minutes 5 seconds long) shared by the World Health Organization (WHO) on Facebook on 19 February 2022. I came across the video three days after it was published on the platform as part of my routine Facebook use. It turned up in my feed because a Facebook friend of mine had shared it (which it how the average Facebook user is presented with content from organisations like WHO if they don’t follow these accounts themselves.) I noticed how much engagement this post had received in those three days. There were 6,000 reactions: including 5k likes but also 551 laughing face emojis (suggesting viewers found the video content risible), 1.2k comments, 2.2k shares and 244k views. I decided to delve into the comments thread to see what people were saying in response to the video.

WHO’s official Facebook page has a huge follower base: at the time that I viewed this video, their page listed over 14 million likes and over 38 million followers. It is clearly a highly trusted Facebook presence. Many of its posts have thousands of reactions (the use of emojis to respond to posts), likes, comments and shares. WHO shares content at least once a day and often more frequently: most of this content is made by WHO itself in its role to communicate preventive health messages globally. In reviewing their latest content, it is evident that WHO has a very busy and accomplished team making their social media content.

The video featured two WHO experts: Dr Mike Ryan (pictured above from the opening section of the video) and Dr Maria Van Kerkhove, both of whom feature regularly in WHO’s social media content. Ryan was introduced in a caption as ‘ED, WHO Health Emergencies Programme’ and Van Kerkhove as ‘COVID-19 technical lead, WHO Health Emergencies Programme’.

In this video, both people spoke to camera as if to an unseen interviewer, explaining why they were concerned about governments beginning to loosen COVID restrictions too quickly.

The written introduction to the video stated:

Some countries are lifting all public health and social measures despite high numbers of COVID-19 cases/deaths. Dr Mike Ryan and Dr Maria Van Kerkhove explain why a slow approach is better.

Ryan and Van Kerkhove went on to use simple English to acknowledge that there is a strong desire on the part of governments and citizens to ‘open up’ and remove all COVID restrictions and ‘go back to normal’. They warn, however, that such actions could lead to the pandemic continuing ‘much longer than it needs to be’ due to ‘the political pressure to open up’ in ‘some situations’, and that replacing abandoned control measures would be difficult if a new variant emerged. Ryan and Van Kerkhove emphasise the importance of ‘a slow, step-wise approach’ to lifting COVID restrictions rather than an ‘all-or-nothing approach’ that ‘many countries’ are adopting at this point in the COVID crisis.

Both speakers are careful not to single out individual leaders or governments for criticism in these quite vague statements, leaving it up to the viewer to make a judgement about exactly to which ‘situation’ they are referring. These experts also ‘acknowledge uncertainty’ and that their concerns may be unfounded but emphasise the need for caution. They note that they do not ‘blame anyone’ for feeling confused, given the continual flux in governments’ COVID measures. Van Kerkhove ends by stating firmly that ‘you [the video viewers] have control over this’ regardless of government actions and then Ryan chimes in by asking ‘every individual just to look at your situation’ and ‘be smart, protect yourself, protect others, get vaccinated and just be safe and careful’.

There’s a lot that could be said about the statements made by these two WHO experts in this video: the veiled critique of ‘many countries” government actions and health communication efforts, the focus on individual responsibility in the face of government inaction and lack of responsibility. But I wanted to direct my attention to the more than 1,000 comments Facebook users wrote in response to this video.

I noticed first that comments came from all over the world – evidence again of the global reach and popularity of Facebook. When commentors were responding to each other, therefore, there were many examples of someone in Asia, South America or Africa engaging with Facebook users located in the USA, Australia, Canada, Europe or the UK.

Another observation was that a vigorous debate was occurring in the comments section, with supporters of the video’s messages seeking to argue with those who decried what they saw as an overly cautious or even unscientific argument from the WHO experts. Those who did not support the WHO’s points made such arguments as (my paraphrasing):

  • opening up will help the economy – people need jobs
  • people’s lives need to get back to ‘normal’
  • most populations are now adequately vaccinated, so there is no need for further restrictions
  • governments are lying to their citizens and spreading false information as a way of exerting greater control over them
  • the novel coronavirus does not exist and nor does COVID
  • it is risk to one’s health to wear masks for prolonged periods of time
  • other health conditions kill more people than COVID
  • COVID mass testing and mass vaccination have been conducted as a profit-making enterprise serving Big Pharma and governments
  • WHO’s facts are wrong and they are spreading lies and fear, trying to promote their own interests for political purposes
  • WHO has shown little leadership during the pandemic and is ineffectual
  • face masks give a false sense of security and are useless as a preventive measure
  • people who follow government restrictions are being controlled and can’t think for themselves
  • the pandemic has been going on for two years and governments and health agencies like WHO are still not controlling it adequately
  • the person commenting does not like to feel forced to do anything by government authorities, especially if restrictions/mandates do not help the situation (in their view) – ‘my body, my choice’
  • even vaccinated people can still become infected with or transmit the coronavirus, fall ill or die of COVID – they are therefore pointless
  • COVID is ‘real’ but controllable like influenza or no worse than the common cold
  • governments who continue to impose restrictions/mandates are ‘Socialist’
  • people’s immune systems can be strengthened without vaccines due to basic health promoting strategies
  • people are dying from being given too many COVID vaccines (including children), not from the disease itself
  • vaccines are ‘bioweapons’
  • the medical establishment and the government are forcing COVID vaccines on people and hiding evidence of their serious side-effects
  • there is a difference between ‘dying with COVID’ and ‘dying from COVID’ – governments and health agencies are deliberately obscuring this
  • people need to be freed from living in fear
  • scientists and medical experts are controlled by governments to serve political agendas
  • ‘commonsense’ practices such as eating a healthy diet, taking Vitamin D and washing hands regularly will adequately protect against COVID

People who supported the points made by the WHO experts in the video tended to be reactive in their comments, responding to the naysayers using such rationales as:

  • COVID is a real threat and has killed many people – we still need to be cautious to protect ourselves and others
  • even though the situation seems to be improving in many countries, new variants could emerge that could pose major challenges
  • scientific and medical knowledge and expertise should be trusted over other information sources
  • many people are still dying
  • opening up too quickly will lead to many more deaths globally
  • vaccines do protect against serious disease and death and everyone should accept them: the benefits outweigh any risk
  • face masks are important protective agents against infection (just as shoes, for example, protect against foot injuries)
  • people who don’t want to conform to COVID restrictions/mandates are being selfish and don’t understand the importance of self-sacrifice to protect others
  • wearing face masks and getting vaccinated are small sacrifices to make for the greater good and saving others’ lives as well as self-protection
  • economies are damaged if too many workers become ill from COVID and can’t go to work
  • the person commenting still feels at high risk from COVID and is happy to continue to engage in preventive measures such as wearing masks and accepting vaccination
  • young children have not yet been protected by COVID vaccination in many countries and therefore are vulnerable to infection
  • mass vaccination programs have worked well globally to protect people against other serious diseases, such as polio
  • people who support dropping all restrictions are engaging in magical thinking or do not want to face reality
  • low income countries do not have enough medical support to help people who become ill with COVID
  • countries should work together in a global response to COVID rather than simply pursing nationalistic interests

Rhetorical strategies on the part of both ‘sides’ of the argument included:

  • giving examples from their own lives/health (e.g. they had avoided COVID because of wearing face masks and getting vaccinated or they avoided COVID because their immune systems were naturally strong and not weakened by vaccines)
  • describing the situations of people they knew personally (e.g. those who died from COVID vaccines or those who died because they refused COVID vaccines)
  • urging people to ‘do their research’ or ‘due diligence’ and not just rely on television, social media or what their friends tell them
  • accusing those who are disagreeing with them of ‘lying’, ‘making up facts to suit their agenda’, as ‘stupid’ or simply gullible (to either misinformation or in believing the science)
  • providing hyperlinks to articles or blog posts outside of Facebook to support their claims and urging others to read them as part of educating themselves about the ‘facts’
  • claiming ‘truth’ in response to ‘non-truths’, ‘lies’ or ‘fake news’
  • contrasting the value of all human lives versus the value of individual freedom
  • the use of large numbers to support the validity of the arguments

As just one example of a pithy exchange between two commentators:

Commentator 1: We can’t stop living.

Commentator 2: 900,000 Americans have.

These findings demonstrate the kinds of beliefs and rationales underpinning Facebook users’ concepts of COVID risk and their attitudes towards COVID restrictions. Both sides received ardent support from others. Comments sometime descended into ad hominem attacks but most of the content was focused on presenting opinions or ‘facts’ and responding to these arguments with counter-claims. Most of the commentators attempted to act as educators, challenging the misinformation or extreme views put forward by the naysayers. Emotions ran high as people defended their position or accused others of stupidity, blindness to the truth or making up facts. Some extreme misinformation positions and conspiracy theories were advanced (e.g. ‘the holy blood of Jesus Christ is our only protection’) but many arguments concerned topics such as whether vaccines were necessary or effective (and how many there should be) or raised issues around the politics of COVID control.

The main insight from this single case study of COVID commentary in response to a peak health agency’s video posted to Facebook is that there was little evidence of an echo-chamber or filter bubble where only one main viewpoint was put foward. Instead, vigorous debate and contestation about ‘the truth’ went on in the comments section, suggesting an open forum for many opinions to be aired. However, it was also clear that people’s opinions or beliefs were not challenged in and through the debates or comments. Despite all the argumentation and presenting of examples from personal experience or hyperlinks to other material, no consensus or acceptance of other people’s opposing views was evident in these comment threads.

A very COVID Christmas

With less than four weeks to go before Christmas, decorations are going up in shopping centres, public spaces and private homes. This year, excitement and anticipation are mixed with fear and uncertainty. Christmas 2019 was the last ‘pre-COVID’ celebration of that festival. We are now in the ‘post-COVID’ world: the term I give to the era after the world first heard about the unusual pneumonia-like illness affecting people in Wuhan at the very end of 2019.

In this first post-COVID Christmas, uncertainty reigns about how best to celebrate the festival. A range of COVID-themed Christmas decorations are readily found online. These include baubles featuring images of Christmas icons such as Santa Claus or cute reindeer wearing masks. The novel coronavirus itself can be found rendered in Christmas-themed decorations (dubbed ‘pandemic ornaments’) for trees: in bright green and red hues, gold and glittery or grouped with other COVID iconic objects such as toilet rolls and masks. Other COVID customised decorations declare 2020 as ‘The year we stayed home‘ or display the words ‘Merry Christmas’ together with a coronavirus symbol wearing a jolly Santa hat. A less merry tree ornament features the dread image of the mediaeval plague doctor’s mask.

Face masks themselves can be obtained for wear at gatherings with Christmassy-themed patterns. Even Christmas stockings designed for holding Santa gifts for young children can be purchased with COVID themes emblazoned on them (‘Purple Viral Particle Large Christmas Stocking‘, anyone?).

At first glance, given the devastation that the COVID crisis has wrought globally, these ways of commemorating the ‘COVID year of 2020’ may seem jarring, a tasteless example of commercial entrepreneurialism and disrespectful to the dead or those who have been cast into poverty because of losing employment. In many countries, such as the USA Brazil and India, coronavirus infections and COVID deaths are increasing daily, with little sign of abating. The world has recorded the grim total of nearly 1.5 million deaths from COVID (and this figure is likely a gross underreporting).

In many countries in which Christmas is traditionally a significant festival, such as the UK, people are being urged to form ‘bubbles’ with a small number of other households – or even to reconsider celebrating Christmas at all with gatherings. Fears are rightly held by health authorities in the USA for the possibility of Christmas-related surges of infections, due to people dropping their guard when meeting loved ones and not engaging in physical distancing, wearing masks or opening enough windows (in what will be very cold conditions for many people celebrating in the Northern Hemisphere).

In Australia, where the coronavirus at the moment is well-contained, federal and state governments have made pronouncements about the importance of opening state borders to allow travel across the country for Christmas. Yet the recent example of an unexpected outbreak in the city of Adelaide, followed by the sudden re-closure of some state borders, gives pause for those who may be considering interstate travel for the festivities. Once over the border, they may find themselves stuck in quarantine or unable to travel back home if there is an outbreak.

The insistence on continuing to celebrate Christmas ‘as usual’ and even to commemorate the first year of COVID with customised decorations is understandable. Prolonged uncertainty and fear are hard to live with. People are desperate to return to ‘normal’ and to engage in the usual celebrations with family members and close friends. Purchasing and displaying COVID-themed decorations is a way of acknowledging that we have all gone through a very difficult year, with losses of many kinds: not just in terms of deaths of loved ones or going through severe illness that for some has caused continuing debilitation, but also the usual rites of passage, celebrations and regular gatherings that give people joy and hope. The Christmas festival, after all, began from European pagan rituals centred around warmth, light, feasting and hope conducted in the dead of winter, when darkness and cold reigned and few signs of life were evident in the natural world.

Pandemic decorations may be the only way some people can celebrate Christmas safely, while also celebrating surviving this first ‘annus horribilis’ of the post-COVID world. As one Christmas bauble has it: ‘2020 sucked – yay Christmas!‘.

Image credit: Marco Verch. CC BY 2.0. Available from Flickr